Kidney disease: key data sources
Primary care data
Practice Team Information (PTI)
The Practice Team Information (PTI) programme provides statistics on consultations in primary care in Scotland. A general overview of the data provided by PTI is available in the primary care information section. Information on renal disease is not routinely available but diagnostic codes for renal disease are included in Read code groupings 135 to 138. Further information on Read code groupings is available in the PTI section on the ISD website. As of September 2013, PTI data are no longer collected by ISD. The Scottish Primary Care Information Resource (SPIRE) is a replacement system currently under development which will collect more detailed data from a greater number of practices. More information is available on the SPIRE website.
Quality and Outcomes Framework (QOF)
The General Medical Services contract for general practices, introduced in 2004, includes a voluntary Quality and Outcomes Framework (QOF). The QOF measures achievement against a range of evidence-based indicators and includes quality indicators for chronic kidney disease (CKD). The advantage of this data source is its national level of coverage. One important disadvantage is that only aggregated data are available, so it is not possible to adjust for age or other differences when making comparisons between populations.
QOF data on CKD are briefly reviewed on the Scottish data web page in this section. Detailed statistics on quality achievements and on prevalence of CKD in the QOF are available from the ISD website. Because of changes to primary care contracts in Scotland it is unlikely that any new QOF data will be available after 2016/17.
Data on the quantity of CKD-related items prescribed by primary care services in Scotland are available from ISD's Prescribing Programme.
Secondary care data
Data on hospital inpatient and day case discharges are held in the Scottish Morbidity Record (SMR01) database. ISD do not routinely report national data on hospital inpatient and day case discharges for CKD or acute kidney infection (AKI) separately. Data are however available on the number of discharges by specialty (Renal Medicine) and by main diagnosis (ICD codes N17-N19 Acute renal failure, Chronic renal failure and Unspecified kidney disease).
An overview of SMR01 data is available in the section on hospital discharges. Data on outpatient consultations are held in the SMR00 database. Though these do not include complete information on diagnoses, the specialty of the outpatient service used is recorded.
Mortality data by underlying cause of death are published annually by the National Records for Scotland (formerly the General Register Office for Scotland). However, there are no routine publications providing national data on mortality with CKD as the cause. CKD mortality data are briefly reviewed on the Scottish data page in this section.
Regional biochemistry/laboratory data are available from local safe havens.
Scottish Renal Registry
The Scottish Renal Registry (SRR) is a national registry of patients receiving renal replacement therapy for established renal failure in Scotland. The SRR reports epidemiology, and audits against recommended standards of care, promoting excellence in renal care in Scotland. All NHS Renal Units contribute fully. RRT data are briefly reviewed on the Scottish data page in this section.